NOTE:  I WOULD SUGGEST THAT ANY PERSON WHO HAS EXPERIENCED MAJOR INSECURE ATTACHMENT/EARLY TRAUMA AND RELATED FAMILY MEMBERS OF THIS PERSON ARE SUFFERING FROM AN UNRECOGNIZED ‘DISEASE’ THAT IS AS SERIOUS AS ANY WE CAN THINK OF WITH NAMES – LIKE THE ONES THESE ARTICLES ARE ABOUT – AGAIN, IT IS THE EFFECT OF THE STRESS/DISTRESS LIVING WITH THE TRAUMA-CHANGED DISABILITIES THAT MATTERS – AS THIS INFLUENCE CROSSES DISCIPLINARY FIELDS OF STUDY ABOUT INDIVIDUAL ‘NAMED’ DISORDERS

 

These articles listed include research MODELS used – also articles repeatedly use ‘stress/stressors and coping’ and ‘adjustment’, which are tied to resiliency – and which are able to be influenced in many positive ways

 

Also included – impact of perception and cognitions related to this topic

A term used – protective factors

 

Also consider LIFE SATISFACTION – which would be relative according to what a person KNOWS – what is possible?  How is life satisfaction interrelated to all aspects of health across lifespan?  i.e.:  Fathers of Children with Disabilities: Stress and Life Satisfaction.

 

 

(personal note – my father was influenced greatly by the STRESS of living with mentally ill mom – nobody identified this, or how his own childhood stress increased his vulnerabilities in NOT being able to cope/respond better to the conditions he and we were faced with – probably VERY frequent in all cases to some degree where a family member has insecure attachment – which is at least half of the population)

 

 

++++++++++++++++++++++++++++++++++

 

Parental stress in families of children with a genetic disorder/disability and the resiliency model of family stress, adjustment, and adaptation.

Hall HR, Neely-Barnes SL, Graff JC, Krcek TE, Roberts RJ, Hankins JS.

Issues Compr Pediatr Nurs. 2012;35(1):24-44.

PMID:

22250965

[PubMed – in process]

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The health and well-being of caregivers of children with cerebral palsy.

Raina P, O’Donnell M, Rosenbaum P, Brehaut J, Walter SD, Russell D, Swinton M, Zhu B, Wood E.

Pediatrics. 2005 Jun;115(6):e626-36.

PMID:

15930188

[PubMed – indexed for MEDLINE]

Free Article

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Coping strategies used by parents of children with autism.

Twoy R, Connolly PM, Novak JM.

J Am Acad Nurse Pract. 2007 May;19(5):251-60.

PMID:

17489958

[PubMed – indexed for MEDLINE]

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State of the science on parental stress and family functioning in pediatric intensive care units.

Board R, Ryan-Wenger N.

Am J Crit Care. 2000 Mar;9(2):106-22; quiz 123-4. Review.

PMID:

10705424

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Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome.

Dabrowska A, Pisula E.

J Intellect Disabil Res. 2010 Mar;54(3):266-80. Epub 2010 Feb 8.

PMID:

20146741

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Creating opportunities for parent empowerment: program effects on the mental health/coping outcomes of critically ill young children and their mothers.

Melnyk BM, Alpert-Gillis L, Feinstein NF, Crean HF, Johnson J, Fairbanks E, Small L, Rubenstein J, Slota M, Corbo-Richert B.

Pediatrics. 2004 Jun;113(6):e597-607.

PMID:

15173543

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Free Article

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Stress and coping in families with ill or disabled children: application of a model to pediatric therapy.

Cherry DB.

Phys Occup Ther Pediatr. 1989;9(2):11-32.

PMID:

15772024

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Relations between social support, appraisal and coping and both positive and negative outcomes for children of a parent with multiple sclerosis and comparisons with children of healthy parents.

Pakenham KI, Bursnall S.

Clin Rehabil. 2006 Aug;20(8):709-23.

PMID:

16944828

[PubMed – indexed for MEDLINE]

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Effects of family coping and resources on family adjustment and parental stress in the acute phase of the NICU experience.

Pinelli J.

Neonatal Netw. 2000 Sep;19(6):27-37.

PMID:

11949118

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Families of children with Down syndrome: responding to “a change in plans” with resilience.

Van Riper M.

J Pediatr Nurs. 2007 Apr;22(2):116-28.

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17382849

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Daily living with distress and enrichment: the moral experience of families with ventilator-assisted children at home.

Carnevale FA, Alexander E, Davis M, Rennick J, Troini R.

Pediatrics. 2006 Jan;117(1):e48-60.

PMID:

16396848

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Sense of coherence and parenting stress in mothers and fathers of preschool children with developmental disability.

Oelofsen N, Richardson P.

J Intellect Dev Disabil. 2006 Mar;31(1):1-12.

PMID:

16766317

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Family stress, perceived social support and coping following the diagnosis of a child’s congenital heart disease.

Tak YR, McCubbin M.

J Adv Nurs. 2002 Jul;39(2):190-8.

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Family pain history predicts child health status in children with chronic rheumatic disease.

Schanberg LE, Anthony KK, Gil KM, Lefebvre JC, Kredich DW, Macharoni LM.

Pediatrics. 2001 Sep;108(3):E47.

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Perceived problem-solving ability, stress, and coping in mothers of children with physical disabilities: potential cognitive influences on adjustment.

Noojin AB, Wallander JL.

Int J Behav Med. 1997;4(4):415-32.

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“You can only take so much, and it took everything out of me”: coping strategies used by parents of children with cancer.

Miedema B, Hamilton R, Fortin P, Easley J, Matthews M.

Palliat Support Care. 2010 Jun;8(2):197-206.

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Use of the resiliency model of family stress, adjustment and adaptation in the analysis of family caregiver reaction among families of older people with congestive heart failure.

Yeh PM, Bull M.

Int J Older People Nurs. 2011 Apr 8. doi: 10.1111/j.1748-3743.2011.00275.x. [Epub ahead of print]

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Comparing adolescents’ adjustment and family resilience in divorced families depending on the types of primary caregiver.

Shin SH, Choi H, Kim MJ, Kim YH.

J Clin Nurs. 2010 Jun;19(11-12):1695-706. Epub 2010 Mar 16.

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Meeting the needs of parents around the time of diagnosis of disability among their children: evaluation of a novel program for information, support, and liaison by key workers.

Rahi JS, Manaras I, Tuomainen H, Hundt GL.

Pediatrics. 2004 Oct;114(4):e477-82.

PMID:

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Free Article

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Stresses and coping strategies of Chinese families with children with autism and other developmental disabilities.

Wang P, Michaels CA, Day MS.

J Autism Dev Disord. 2011 Jun;41(6):783-95.

PMID:

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Parental experience of family resources in single-parent families having a child with cancer.

Huang IC, Mu PF, Chiou TJ.

J Clin Nurs. 2008 Oct;17(20):2741-9.

PMID:

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Family pediatrics: report of the Task Force on the Family.

Schor EL; American Academy of Pediatrics Task Force on the Family.

Pediatrics. 2003 Jun;111(6 Pt 2):1541-71.

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Free Article

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A family-based approach to the prevention of depressive symptoms in children at risk: evidence of parental and child change.

Beardslee WR, Gladstone TR, Wright EJ, Cooper AB.

Pediatrics. 2003 Aug;112(2):e119-31.

PMID:

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The impact of children with high-functioning autism on parental stress, sibling adjustment, and family functioning.

Rao PA, Beidel DC.

Behav Modif. 2009 Jul;33(4):437-51. Epub 2009 May 12.

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Parent training interventions for Attention Deficit Hyperactivity Disorder (ADHD) in children aged 5 to 18 years.

Zwi M, Jones H, Thorgaard C, York A, Dennis JA.

Cochrane Database Syst Rev. 2011 Dec 7;12:CD003018. Review.

PMID:

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Response to the presence of a child with disabilities: parental stress and family functioning over time.

Dyson LL.

Am J Ment Retard. 1993 Sep;98(2):207-18.

PMID:

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Children with disabilities: a longitudinal study of child development and parent well-being.

Hauser-Cram P, Warfield ME, Shonkoff JP, Krauss MW, Sayer A, Upshur CC.

Monogr Soc Res Child Dev. 2001;66(3):i-viii, 1-114; discussion 115-26. Review.

PMID:

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The effects of family resources, coping, and strains on family adjustment 18 to 24 months after the NICU experience.

Doucette J, Pinelli J.

Adv Neonatal Care. 2004 Apr;4(2):92-104.

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15138992

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Stress and well-being among parents of children with rare diseases: a prospective intervention study.

Dellve L, Samuelsson L, Tallborn A, Fasth A, Hallberg LR.

J Adv Nurs. 2006 Feb;53(4):392-402.

PMID:

16448482

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Evaluating a dynamic process model of wellbeing for parents of children with disabilities: A multi-method analysis.

Resch JA, Benz MR, Elliott TR.

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22369118

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Southeast Asian parents raising a child with autism: a qualitative investigation of coping styles.

Luong J, Yoder MK, Canham D.

J Sch Nurs. 2009 Jun;25(3):222-9. Epub 2009 Apr 13.

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Stress and personal resource as predictors of the adjustment of parents to autistic children: a multivariate model.

Siman-Tov A, Kaniel S.

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An expanded Transactional Stress and Coping Model for siblings of children with sickle cell disease: family functioning and sibling coping, self-efficacy and perceived social support.

Gold JI, Treadwell M, Weissman L, Vichinsky E.

Child Care Health Dev. 2008 Jul;34(4):491-502. Epub 2008 May 15.

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18485027

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Child, parent and family factors as predictors of adjustment for siblings of children with a disability.

Giallo R, Gavidia-Payne S.

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17100954

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[Mothers’ experience with their developmentally disordered children: specificity of internal representations].

Pukinskaite R, Praninskiene R.

Medicina (Kaunas). 2008;44(7):553-63. Lithuanian.

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18695353

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Free Article

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Coping strategies in mothers and fathers of preschool and school-age children with autism.

Hastings RP, Kovshoff H, Brown T, Ward NJ, Espinosa FD, Remington B.

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16155055

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Stress and coping in families of children with Smith-Magenis syndrome.

Hodapp RM, Fidler DJ, Smith AC.

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Paediatric occupational therapy: addressing parental stress with the sense of coherence.

Stokes RH, Holsti L.

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20302187

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Parents’ personality and parenting stress in families of children with spina bifida.

Vermaes IP, Janssens JM, Mullaart RA, Vinck A, Gerris JR.

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18796058

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Accentuate the positive to mitigate the negative: mother psychological coping resources and family adjustment in childhood disability.

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20121665

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Development of infants with disabilities and their families: implications for theory and service delivery.

Shonkoff JP, Hauser-Cram P, Krauss MW, Upshur CC.

Monogr Soc Res Child Dev. 1992;57(6):v-vi, 1-153. Review.

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1283200

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Parenting stress in mothers of children with an intellectual disability: the effects of parental cognitions in relation to child characteristics and family support.

Hassall R, Rose J, McDonald J.

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15882391

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The experiences of families of children with learning disabilities: parental stress, family functioning, and sibling self-concept.

Dyson LL.

J Learn Disabil. 1996 May;29(3):280-6.

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Parenting stress and children with cerebral palsy: a European cross-sectional survey.

Parkes J, Caravale B, Marcelli M, Franco F, Colver A.

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21707599

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Disability, spiritual beliefs and the church: the experiences of adults with disabilities and family members.

Treloar LL.

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12437609

[PubMed – indexed for MEDLINE]

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The Family Stress and Coping Interview for families of individuals with developmental disabilities: a lifespan perspective on family adjustment.

Nachshen JS, Woodford L, Minnes P.

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Psychological stress in adoptive parents of special-needs children.

McGlone K, Santos L, Kazama L, Fong R, Mueller C.

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12014464

[PubMed – indexed for MEDLINE]

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The health of caregivers for children with disabilities: caregiver perspectives.

Murphy NA, Christian B, Caplin DA, Young PC.

Child Care Health Dev. 2007 Mar;33(2):180-7.

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17291322

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Fathers of Children with Disabilities: Stress and Life Satisfaction.

Darling CA, Senatore N, Strachan J.

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PMID:

22281940

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Socioeconomic and psychological variables as risk and protective factors for parental well-being in families of children with intellectual disabilities.

Olsson MB, Hwang CP.

J Intellect Disabil Res. 2008 Dec;52(12):1102-13. Epub 2008 May 26.

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18507702

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Coping and social support of parents with a diabetic child.

Seppänen SM, Kyngäs HA, Nikkonen MJ.

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10894653

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Behaviour and emotional problems in toddlers with pervasive developmental disorders and developmental delay: associations with parental mental health and family functioning.

Herring S, Gray K, Taffe J, Tonge B, Sweeney D, Einfeld S.

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Current parental stress in maltreating and nonmaltreating families of children with multiple disabilities.

Benedict MI, Wulff LM, White RB.

Child Abuse Negl. 1992;16(2):155-63.

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1532764

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[Parents’ coping with a diabetic child].

Seppänen S, Kyngäs H, Nikkonen M.

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Stress and coping in families with deaf children.

Feher-Prout T.

J Deaf Stud Deaf Educ. 1996 Summer;1(3):155-65.

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[Coping in children of parents with schizophrenia–strikingly deceptive strategies].

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19143233

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Well-being of parents of young children with asthma.

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Use of the questionnaire on resources and stress (QRS-F) with parents of young children with autism.

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15937040

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Parental stress is associated with poor sleep quality in parents caring for children with developmental disabilities.

Gallagher S, Phillips AC, Carroll D.

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PMID:

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Posttraumatic stress disorder in children and their parents following admission to the pediatric intensive care unit: A review.

Nelson LP, Gold JI.

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21499173

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Parental locus of control and psychological well-being in mothers of children with intellectual disability.

Lloyd T, Hastings RP.

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19404831

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Families at high and low risk for depression: a 3-generation study.

Weissman MM, Wickramaratne P, Nomura Y, Warner V, Verdeli H, Pilowsky DJ, Grillon C, Bruder G.

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PMID:

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Free Article

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Acute stress disorder symptoms in children and their parents after pediatric traffic injury.

Winston FK, Kassam-Adams N, Vivarelli-O’Neill C, Ford J, Newman E, Baxt C, Stafford P, Cnaan A.

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PMID:

12042584

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A description of stressors and coping strategies among parents of critically ill children–a preliminary study.

Carnevale FA.

Intensive Care Nurs. 1990 Mar;6(1):4-11.

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2329271

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The coping responses of the adolescent siblings of children with severe disabilities.

Opperman S, Alant E.

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Stress and the quality of life in the parents of young people with intellectual disabilities.

Browne G, Bramston P.

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10067490

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